Comments on: Patients Forced to Play Medical Roulette https://hope411.org/advocacy-center/pain-advocacy/patients-forced-to-play-medical-roulette/?utm_source=rss&utm_medium=rss&utm_campaign=patients-forced-to-play-medical-roulette Pursuing Health Equity Mon, 31 Jul 2023 08:35:48 +0000 hourly 1 https://wordpress.org/?v=6.4.1 By: Hope411Adcock https://hope411.org/advocacy-center/pain-advocacy/patients-forced-to-play-medical-roulette/comment-page-1/#comment-673 Mon, 04 Jul 2022 22:12:30 +0000 https://hope411.org/?p=1215#comment-673 In reply to Tammy Teer.

I agree completely Tammy.

One of the most significant problems that patients who need palliative care encounter is that there’s a fundamental misconception that it’s exclusively for end of life care. Many states don’t have palliative definitions codified, so palliative care agencies set their own policies and definitions which can vary widely within the state and a city.

]]> By: Tammy Teer https://hope411.org/advocacy-center/pain-advocacy/patients-forced-to-play-medical-roulette/comment-page-1/#comment-671 Mon, 04 Jul 2022 17:01:54 +0000 https://hope411.org/?p=1215#comment-671 This same significant problem, the conflict of understanding palliative care, continues to arise and is negatively affecting many in the chronic illness community.
The true definition of palliative care is specialized medical care for people living with a serious illness. This should be universally recognized by all who participate in our healthcare system. (https://www.nia.nih.gov/health/what-are-palliative-care-and-hospice-care#:~:text=Palliative%20care%20is%20specialized%20medical,to%20cure%20their%20serious%20illness.).

]]> By: Hope411Adcock https://hope411.org/advocacy-center/pain-advocacy/patients-forced-to-play-medical-roulette/comment-page-1/#comment-665 Tue, 14 Jun 2022 01:15:01 +0000 https://hope411.org/?p=1215#comment-665 In reply to Dora Winterz.

Thank you Dora.

We had thought Palliative Care (PC) might potentially be the solution. But, in our area, the Palliative Care practices do not prescribe medication outside of Hospice. One PC company informed me that she didn’t meet *their* criteria, since she’s anticipated to live longer than 12 months. And, doesn’t have the *right* diagnosis. Although, she is profoundly disabled with multiple overlapping medical conditions that impair her ability to function, without a diagnosis of cancer, COPD or Congestive Heart Failure she doesn’t qualify.

]]> By: Dora Winterz https://hope411.org/advocacy-center/pain-advocacy/patients-forced-to-play-medical-roulette/comment-page-1/#comment-664 Tue, 14 Jun 2022 01:04:58 +0000 https://hope411.org/?p=1215#comment-664 I hope and pray you can find help for your daughter. It is a horrible corrupt time in history that we have gov’t and insurance companies controlling the decisions of our doctors. In turn control the destiny of the patient which often times are under-treated or abandoned to suffer and die without pain relief. Cruel and inhumane.
Heartbreaking ?

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